As our loved ones age, they may experience a wide range of health conditions that cause discomfort and chronic pain. From arthritis and osteoporosis to neuropathy, dental issues, and digestive problems, pain is an unfortunately common part of aging. While medical providers often prescribe treatments such as medications, physical therapy, or lifestyle adjustments, there is a significant challenge when pain occurs in older adults living with dementia.
For individuals with Alzheimer’s disease or other forms of dementia, recognizing and treating pain becomes particularly complex. As dementia progresses, a person's ability to communicate verbally diminishes, making it difficult for caregivers and even medical professionals to determine when and why pain is occurring. Without clear communication, pain often goes undiagnosed and untreated—leading to unnecessary suffering.
Why Pain Often Goes Unnoticed in People with Dementia
When a person with dementia can’t explain what they’re feeling, pain may present in ways that are easy to misinterpret. Rather than saying “I hurt,” someone might display changes in behavior that are mistaken as typical symptoms of cognitive decline. These nonverbal indicators may include:
According to researchers at the University of Alberta, families and caregivers often attribute these behaviors to the dementia itself, rather than viewing them as signs of physical pain. Education and awareness are key. The University offers an insightful online tutorial designed to help families better recognize when their loved one may be suffering.
The Call for Better Pain Management in Dementia Care
Medical experts emphasize the need for increased access to palliative and hospice care for people with dementia. Dr. Alexia Torke of the Indiana University School of Medicine explains that dementia is a terminal illness that deserves the same compassionate care typically reserved for other life-limiting diseases.
“Palliative care can significantly enhance the quality of life for individuals who are no longer able to articulate their needs,” Dr. Torke notes. “It also eases the emotional burden on caregivers by offering tools and guidance to manage distressing symptoms.”
Research Highlights: Dementia, Pain, and the Gap in Home-Based Care
A recent national study from the UCSF School of Nursing sheds further light on the issue. Lead author Lauren Hunt, RN, MSN, conducted the study after witnessing firsthand how often people with dementia suffer from unaddressed pain while receiving care at home.
The findings were stark:
Barriers to treatment often stem from mobility limitations, lack of transportation, and limited access to in-home care services. Dr. Alexander Smith of UCSF emphasized the urgent need for collaborative solutions among researchers, clinicians, and policymakers to improve how pain is assessed and managed in this vulnerable population.
How Geriatric Care Managers Can Help
Geriatric care managers (GCMs) play a vital role in identifying and managing pain in seniors with dementia—especially when communication is a barrier. At LiveWell, our care managers conduct in-depth assessments that look beyond surface symptoms. We work closely with families, physicians, and in-home care providers to ensure pain is properly recognized and treated.
Here’s how a GCM can support your family:
Our goal is to make sure your loved one receives the compassionate, effective care they need—even when they can’t speak for themselves.
Support Your Loved One with Compassionate, Expert Care
Don’t let your loved one suffer in silence—get the help they needIf you suspect a loved one with dementia may be experiencing pain or distress, expert guidance can make all the difference.
